Making the Most of Smaller Population Samples: Qualitative Insights in Rare Disease

Show Notes

In this episode of LifeSci Talks, Mark Wade, Global Practice Leader at TransPerfect Life Sciences, sits down with Dr. Kate Williams, Director of Patient-Centred Outcomes Research at Acaster Lloyd, to explore the nuances of gathering and applying qualitative data in rare disease research. From intaking both the patient and caregiver experience using a narrative approach, to qualitatively describing the experience of living in different disease states, the two focus on the importance of capturing the patient experience beyond the numbers. Tune in and hear about how partnering with patient organizations can help amplify findings across various channels in ways that make sense to every stakeholder, from regulator to clinician to patient.

Bonus resource: Check out the paper Dr. Kate Williams references on AADC in the episode here!

Show Notes

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